Since going for a week without a phlebotomy, I've had a surge in energy. Yesterday, I installed a back porch door - latch, strike, closing mechanism, glass, etc. Then, I totally re-plumbed the upstairs bathroom shower with a line straight to the basement source. Now, it has a great stream of water (up from the piddle) and is not affected by flushing, running taps, etc. Fixed the motorcycle and went for an evening ride.
WOWSERS! It felt so good to be more "normal". Tomorrow is another phlebotomy and a trip to the Cancer Institute for my regular monitoring of the Polycythemia Vera. The PV has been lurking in the background, with hydroxyurea (oral chemotherapy) everyday. Tomorrow's tests will determine the effects of the combination of chemical and phlebotomy treatments. the platelets, RBC and WBC counts should all be normal or below, and the HCT count should be headed back to normal.
I'm appreciating all of the new friends and medical associates who I've met because of this bump-in-the-road. I'm also gaining a sense of oneness with others who are afflicted with more visible and/or more short-term mortality factors. I have great feelings of caring and compassion wash over me at times - seeing a child with cancer or an elderly person struggling to "check out". I have dear friends with grave afflictions who serve as positive role models, never complaining but facing the day's challenges with optimism. To all of them, I say, "thank you for being a dear friend".
Sunday, August 24, 2008
What a great weekend!
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2 comments:
My name is Robert Tollen and I am the listowner of MPD-SUPPORT-L. Please know that there is more then one Internet myeloproliferative disease support list. We currently have over 2,727 subscribers and we've been around since
1994.
To easily subscribe to MPD-SUPPORT-L by email, do the following:
Email to: LISTSERV@LISTSERV.AOL.COM
Subject line: blank or just a dash on AOL
Body: SUBSCRIBE MPD-SUPPORT-L John Smith
(Substitute your first and last name for John Smith's)
Our MPD-SUPPORT-L web site, http://members.aol.com/mpdsupport,
offers interesting information on chronic myelogenous leukemia, chronic myelomonocytic leukemia, polycythemia vera, essential thrombocythemia, agnogenic myeloid metaplasia, myelodysplasia, and myelofibrosis.
Anyone - patient, family member, or health professional, is welcome to join our growing list of subscribers. Our archives are available for you to research information.
Use our EZ web interface to post a message, to reach a listowner, to subscribe, to unsubscribe, to vacation stop and restart your mail, to review and change your delivery options, and for EZ review of our list archives:
http://listserv.aol.com/archives/mpd-support-l.html
Our MPD-SUPPORT-L web home page site:
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Please know that MPD-SUPPORT-L is a patient to patient support group, that we have no censorship, and that we are not controlled by an physician, group of physicians, nor any pharmaceutical company or industry or trade group.
Warm regards,
Robert Tollen,
Listmanager, MPD-SUPPORT-L,
roberttollen@gmail.com or lov2laf@bellsouth.net
Robert,
Thanks for finding my blog and taking the time to write. I doubt that I have more than a few family and friends who occasionally read my blog - and since it's as much for my personal history as anything else, I'm glad to know that there are some other MPD groups. I'll post the connection on IRON JAK.
Thanks Again,
G
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